What is CF? Cystic Fibrosis is a genetic disease (so one is born with it) that messes up the cellular salt transfer process. One of the side effects of this is that it makes the mucus the body makes very thick. Thick mucus makes it very easy for the lungs to catch infectious diseases and loose function over time. Thick mucus also messes up the pancreas so it doesn't produce the enzymes needed to digest food. Nutrition is very important for lung health so not taking in enough calories can create a vicious cycle of weight loss and increase chance of infection and thus more lung function loss. When my son Ember (#k9copEmber) was diagnosed 10 years ago we were told he was likely to live to his 40's if he was fortunate and did all of his treatments. He takes artificial enzymes with every meal and is feed high calorie formula through a tube that goes right into his stomach. He had breathing treatments every day to keep his one lung as healthy is possible (he lost one of his lungs when he was 2 but has since been going strong). There IS hope for people CF. For some, depending on the CF mutation (there are different varieties of CF), there are medicines now that help address the salt transfer symptom. Ember is fortunate to be one of them and has improved (especially in weight gain) since he has been on Orkambi, the new medicine. Both my wife and I are thankful to the Cystic Fibrosis Foundation whom helped fund the research to develop the new medicine. We are also thankful for Virginia Medicaid who picked up the tab after our insurance when Ember had his lung operations to remove his non-functional lung.